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"Body Talk": A Magazine for Youths with Ostomies

Karine Dupuis, RN, MN, ET, The Hospital for Sick Children, Clinical Nurse Specialist / Enterostomal Therapist Nurse, 555 University Avenue, Toronto, ON M5G 1X8, Canada, Laura Robbs, RN, MN, ET, NCA, Trillium Health Center, Clinical Nurse Specialist-Continence, 150 Sherway Drive, Etobicoke, ON M9C 1A5, Canada, and Janice Penner, RN, BScN, ET, B.C. Children's Hospital, Wound Ostomy Continence Nurse Clinician, 4480 Oak Street, Vancouver, BC V6H 3V4, Canada.

BACKGROUND: We have all experienced first hand the developmental challenges associated with being a teenager. Imagine trying to cope with an ostomy, in addition to these “typical” teenage challenges. Unfortunately, there is a lack of educational resources that appropriately address the developmental and psychosocial needs of youths with ostomies. PURPOSE: In response to the lack of available literature regarding the psychosocial needs of youths with ostomies, the Canadian Association for Enterostomal Therapy (CAET) developed a teen-oriented magazine. A group of ten Enterostomal Therapist (ET) nurses from across Canada, and one pediatric social worker participated in this initiative. OBJECTIVES: 1) To create a teen-appropriate educational resource 2) To provide helpful tips, information, and reassuring examples of how teenagers with ostomies have overcome their challenges to fully enjoy typical everyday life 3) To communicate the information in an appealing manner to the targeted audience. METHODOLOGY: The working group solicited youth involvement via questionnaires, phone interviews, focus groups, and meetings. Themes were extracted from the information collected, and sections of the magazine were designed to capture youth-oriented interests. OUTCOMES: The working group, with input from youths, created a unique educational resource titled “Body Talk: A Magazine for Youths with Ostomies”. This presentation will highlight special features of the magazine including fashion, personalized stories, fun and informative exercises displayed in a visually appealing layout. CONCLUSION: This project resulted in effective collaboration and team work among ET nurses and teenagers across the country. Practitioners who care for teenagers and young adults facing ostomy surgery will find this document a valuable resource when addressing the psychosocial needs and concerns of these individuals.

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