Patient Information Revisited - a unique approach to aid patients' understanding of stoma surgery

BACKGROUND Stoma patients require the knowledge, information and support in order to make sense of surgery which involves the formation of a stoma. Specialist Nurse intervention is vital but written information can reinforce verbal information given out and provides a tool or resource for the patient and family to view at home. Information requirements are ongoing throughout treatment and recovery. Previous research has shown that it is crucial to provide information for patients to assist with their rehabilitation and that they value written information that is clear and specific to their needs. (Balmer, 2005, Nicklin, 2002). The provision of pertinent information at appropriate timely intervals addresses these ongoing needs so that adaptation to life with a stoma is ensured. AIM The aim of this paper is to demonstrate the process adopted to produce a high quality booklet with pertinent information which was applicable to all patients undergoing stoma surgery. Determine what information patients and family want and when they want it and demonstrate how appropriate information given at the right time can benefit patients long term. METHODS A working group of 8 nurses collaborated with a manufacturing company to review the current information on offer and devise a more comprehensive and user friendly approach to providing information. A review was made of what information was already available. A qualitative approach was taken and patients were interviewed and their quotes used to illustrate the text. A graphic design company also participated to formulate the end result. RESULTS The process adopted will be explained and the end result demonstrated. A summary of feedback from patients who have experience of using the information booklets and personal experience of clinical nurse specialists.

WORD COUNT 293 Abstract submitted for oral presentation Learning outcomes

1. Understand the importance of good quality timely information for stoma patients
2. Be aware of the need for collaboration with patients and manufacturers when planning resources for others.