The Lived Experience of Having a Diabetic Foot Ulcer Resulting in Amputation

Diabetes affects over 26 million people in the United States and many are over the age of 65 (Centers for Disease Control, 2011). Eight percent of this population will develop foot ulcers and some of these people will need amputation of the affected limb. The purpose of this qualitative study was to explore the lived experience of the patients who had a diabetic foot ulcer that resulted in amputation. Colaizzi’s step-be-step approach to phenomenology was the method used in this qualitative study (Colaizzi, P.F. 1978).   After obtaining IRB approval, semi-structured interviews were conducted to obtain detailed information about the phenomenon from the perspectives of 15 participants. Interviews were digitally recorded after which the researcher transcribed and analyzed data. Data analysis included the development of a coding scheme to ensure trustworthiness of findings.  Rigor in this study was ensured through the development of an audit trail, and re-checking with participants for accuracy.  Five major themes were gleaned from this study including: financial burden, social support, powerlessness, blaming and uncertainty. Psychological effects also included and all-encompassing theme of grief. Participants described individual needs leading to an increased awareness into the ongoing needs of this population. Results from this study showed unique opportunities for improvement in our patient care. Providers may improve patient outcomes before, during, and after diagnosis of a diabetic foot ulcer with a need for amputation. Inter-disciplinary collaboration should improve patient care by improving education. A transitional care model will help to support patients throughout this process and ensure a better outcome by increasing communication in the care of this special population.