Optimizing a Pediatric Ostomy Support Group Utilizing a Multi-Disciplinary Team Approach

Background: In 2001 an Enterostomal Therapist (ET) and Social Worker (SW) developed a Teen Ostomy Group at a Quaternary Children’s Hospital in Toronto, ON as pediatric ostomy support programs were not widely available. The meeting allows children 10-18 years and their family to share experiences living with a temporary or permanent ostomy.  Over time personnel changes led to the group being supported solely by a SW.  Families requested more resources and this led to the need for restructuring the group to better meet their needs. 

Purpose:  To revitalize an existing ostomy support group by adopting a multi-disciplinary approach and enhance resources available to inpatient and outpatient pediatric patients living with an ostomy and help families feel better supported by their health care providers. 

Implementation: In January 2015 the group was renamed Pediatric Ostomy Support Group and included 2 ETs, 1 SW and 1 Child Life Specialist (CLS).  Meetings were increased to bi-monthly.  Structure was changed to give time each meeting for guest speakers.  Children are given separate time away from their parents with the CLS to increase comfort in sharing their experiences on life with an ostomy.   Parents are given time to network and share experiences on supporting their children while facilitated by an ET and SW.   

Outcomes: A 6 month evaluation assessed efficacy of the changes made and 85% of respondents found the group useful in helping them live with their ostomy.  Incorporating a multi-disciplinary team enhanced the psychosocial care available to the group.  Reintegration of the ET improved outpatient support and education.  Group feedback led to the development of educational resources:  ostomy care guideline, funding information, ostomy resource booklet, and ileostomy dietary guidelines to further enhance care.  We hope that this encourages others to develop similar groups to enhance availability of pediatric ostomy support in the community.