Improving Pediatric Ostomy Education by Innovating Learning Materials

Children with ostomies are especially vulnerable and may have difficulty transitioning from hospital to home. Providing patients and families with age specific materials will help the pediatric patient relate to what they’re learning while providing them with the confidence and knowledge needed to participate in childhood/adolescent activities.  Today, the majority of ostomy education available centers on the adult population and often does not include a pediatric focus.  A few ostomy manufacturers have created coloring books and dolls to assist toddlers to pre-school age children, however, the choices are limited. The development of the pediatric lifespan is critical and having supportive materials can provide the patient with the security needed to develop a healthy outlook and relationships with their peers. When a child receives an ostomy their childhood is impacted by their ostomy surgery.   Having age appropriate materials available will increase their confidence, diminish their fears and assist the parents and child in adapting to a new normal.  Each stage of childhood and adolescence has specific needs in order to learn how to manage and accept their ostomy and being able to tailor pediatric education will address specific needs for that age group.  More options for learning materials will increase the bond between the parent and child and child and WOC nurse.  The development of new educational tools including books, pamphlets and technology, required collaboration with parents, WOC nurses, Child Life Specialists, illustrators and designers.  The outcomes of these innovative tools are improved adaptation and increased confidence for the pediatric patient.